My name is Chris Dean. (aka pixiecd) I’m married to an awesome guy who swears he doesn’t mind putting up with me. We have four adult-kids who are surprisingly functional, considering they grew up with me as their Mom.
We all live in the Hoosier State surrounded by the petting zoo I have systematically managed to turn our home and yard into. (Cats, dogs, chickens, Muscovy ducks, geese, and one turkey who thinks she’s a dog.)
I also have Systemic Scleroderma Myositis Unspecified Mixed Connective Tissue Disorder and Fibromyalgia…although I prefer to call it “Bob” since it’s much less of a mouthful and sounds far less contagious. (It also tends to keep conversations with strangers shorter because if they look confused, I am MORE than happy to fill in the details.)
I started writing as a way to keep myself sane (cannot even type that with a straight face) while I was still going through the diagnostic process. Now that they know think they know at least what’s physically wrong with me, I continue to write because I enjoy annoying people…and making them laugh…and making them think…(Can I stop adding reasons yet?)
I’m a firm believer that EVERYONE should be an educated, empowered patient working WITH their Docs, as we are each and every one of us responsible for our own health. It’s also a dirty, rotten shame that so many feel kinda lost in Limbo while they’re still riding the Medical-Go-Round playing pin-the-tail on the diagnosis.
One of the MANY reasons I strive for World Media Dominaton is so I can raise the funds to start a National Chain of “Medical Mystery” Clubs. Or sponser my Dream Home-of-Cures. Until then, I just keep doin' what I do with poking fun at life in general.
If you have a deep, burning desire to contact me to tell me what a horrible hack I am, then take a number and wait in line. (Just kiddin’!) As I was saying…if you’d like to contact me, drop me a line, assist in my plans for World Media Domination, or offer to take over for me…feel free! Deanspub4@aol.com or deanspub@gmail.com
Thanks for stopping by and may you all have a pain-free-as-it-gets day!
Hi Chris, good for you, tackling your pain head on! I went through a 2-year period full of pain until I finally got a diagnosis and effective treatment. It wears you down. I wish at the time I had as good a sense of humor as your's. Lots of luck to you and keep on writing!
ReplyDeleteLisa Weinstein
www.lisagradessweinstein.blogspot.com
Thank you so much for the awesome words of encouragement! I'm glad to see the "effective treatment" part...(I've come to the conclusion I'd rather have that without a "name" for the beast than the other way around!)
DeleteHi Chris! I read this before but I wanted to read it again. :) What is systemic scleroderma? You told me about your Mom with Crohns, do you or any of your babies have any symptoms? I see a Rhumy doc next week to see about RA or Fibro. I am trying to learn more and be prepared! Just curious :) and because I care too..... :)
ReplyDeleteI probably should update a little. *grin* Scleroderma attacts by sending collagen production into overdrive. It acts like scr tissue and narrows arteries and veinf as well as destroying elasticity. So muscles can't stretch and contract, including the muscles of the intestine if it builds up there.
DeleteMy daughter and I have both fought constipation since birth. My second oldest has the oposite problem In one end, out the other. *sigh*
I had a scope a few years ago, but they were only looking for blockages so I don't know if they evenbothered looking for Crohn's or IBD.
My current GI can't stop assuming everything's linked to Sclero, even though it's been a since birth thing. So I'm probably gonna look for a new on who can think outside the box. *grin*
I think I remember reading that RA is found in a higher incidence with Crohn's? I know mom had it too.
I'm sending mad hopes of everything coming back normal (as it gets) and will keep my fingers and toes crossed for you!*hugs*
Hi Chris!
ReplyDeleteI've enjoyed reading your blog since discovering it through November's NaBloPoMo. And I'm here to bestow the Versatile Blogger Award to you and Life Your Way!
If you choose to accept this award, you'll find the details here: http://my-purple-dreams.blogspot.com/2013/01/vba-part-2-nominations.html
Thank you so much! I am truly honored that you thought of me for this. *blush*
DeleteI'll click over, but first I would just like to say, I love your site and what you're doing! Wanting to make a difference just by letting folks know they're not alone in whatever they're going through as exactly why I started writing. (And it doesn't hurt that purple is one of my top 2 favorite colors. *grin*)
What can I say, you have good taste in colors! :) Looking forward to reading more from you!
DeleteLove your blog!! As much as I read so far lol. Found you through We go challenge...sheesh the other initials get jumbled on my head hahaha what were they thinking when naming this challenge and giving it to a bunch of fuzzy brains,sorry I was talking about myself..anyways nice to meet you :-)
ReplyDeleteLOL! It's nice to meet you too!
DeleteIf it makes you feel any better, I keep a word doc minimized that has all the stupid letters on it. I have to check it about 3 times every day during the challenge to make sure I've got it right. UGH!
Hello neighbor! I, too am a hoosier, born and bred...against my will heehee. And yes I was curious, why else would I click on a link that says Curious? LOL Good to know you. Since I am feeling like a blog stalker lol leaving 2 comments in one day..have a great Saturday, what's left of it...Looks like Spring finally decided to show up :)
ReplyDeleteStalker? Pfft! Yeah, that was me that just added you on G+. LOL!
ReplyDeleteIt's awesome to meet a fellow Hoosier. I think most people from here must keep it a secret because I really haven't met too many.
And I HOPE Spring has FINALLY decided to show up. I am so ready for at least 60's weather. Finger crossed it sticks. *grin*